Friday, April 4, 2014

Sanfilippo Disease

Hi everyone! I hope your Friday is going well. Today I want to share with you a cause that needs your help. A distant relative of mine has a disease called Sanfilippo. This is a deadly disease and they have found a cure!! However, they need to raise money in order to receive the cure. For many with the disease it is too late, but there is hope for the future of Sanfilippo. To learn more watch the video below.

 

I have been planning on buying myself the green striped dress I shared a couple of days ago and some other things from forever21, but after seeing this video I was reminded of the pain that these families go through and that it can be stopped. So I decided to use the money I would have spent and donate it instead. Here is the link to donate:
http://www.gofundme.com/ElizaONeill

For more information or updates you can follow Johan's Just Begun on Facebook here:
https://www.facebook.com/pages/Jonahs-Just-Begun-Foundation-to-Cure-Sanfilippo-Inc/132452613432013

Or check out the website here:
http://jonahsjustbegun.org/



Have a great weekend and PLEASE donate!
 

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